Heartbreaking moment Aussie girl pleads to save her sister’s life: ‘I don’t want her to not live’

A little girl has begged Australians to help save her terminally ill sister after changes to her NDIS plan left her without access to critical care.

Koa Eve Gibson, three, was diagnosed with a rare and incurable neurological condition called Lissencephaly when she was five weeks old.

The toddler from Geelong, 75km southwest of Melbourne, also suffers from advanced cerebral palsy, chronic lung disease and a host of related conditions.

Koa, or ‘Koko’ as she is called by her loved ones, is currently receiving palliative care at her home where she lives with her two sisters, six-year-old Ava and ten-month-old Sky, and her loving parents Ben and Aleisha.

On Thursday, Ms Gibson posted a video of Ava begging for Koa’s life, moments after finding out her NDIS package had been cut by 55 per cent.

“Will Koa even survive without all this help?” the crying girl asks her mother.

‘Will she? I don’t want her not to be alive. What if she can’t live without all this help? Do the caregivers want to leave?’

‘I want her to live.

Koa (pictured with her older sister Ava) was diagnosed with a rare and incurable neurological condition called Lissencephaly when she was just five weeks old

Mrs Gibson assures that her daughter Koa’s caregivers do not want to leave and that she will “fight very hard” to ensure that does not happen.

In an Instagram post, the mother-of-three detailed the scale of the NDIS cuts.

‘Today I received a painful message. NDIS couldn’t even afford my family the decency to speak to me,” she wrote.

‘Instead, they emailed my support coordinator at 4:59pm (1 minute before closing so we couldn’t talk to them) for a decision they made yesterday but didn’t have the courtesy to advise me that same day.

“They waited more than 30 hours and sent an email.”

Ms Gibson revealed funding for Koa’s essential nursing support, wheelchair accessible car, music therapy and Guide Dogs Australia therapist had been cut.

She said the NDIS had reduced the toddler’s therapy budget and ‘didn’t believe she needed a comfortable, relaxing but supportive chair at home’.

“So she stays on the couch,” she continued.

“They advised her that she could not afford comfort, that she could not afford hydrotherapy, that she could not afford musical joy, that they had removed all joy and basic human necessities.

“But you see Koa finds joy in the simplest things and they’ve been taken away from you.”

Funding was cut this week for three-year-old Koa’s essential nursing support, a wheelchair-accessible car, music therapy and a Guide Dogs Australia therapist

Aleisha Gibson says her terminally ill daughter Koa is just a ‘cost saver’ for the NDIS

Koa relies on oxygen tanks and the help of medical professionals to stay alive and suffers more than 120 seizures every month.

Ms Gibson said her daughter was simply a “cost saver” for the NDIS.

“She will die, and this will be neglect on NDIS,” she wrote.

“With inhumane employees who lied to us today and didn’t tell us anything, the decision has been made. She’s human. My child. My baby.

“NDIS, you failed a sweet, innocent girl. But you will not hear the last of me, I will fight to her death… I will NOT let you do this to another sick and dying child!’

a GoFundMe is raising money to help the Gibson family buy their own wheelchair-accessible car so Koa can leave her home.

“Our big dream for the Gibsons is to be able to celebrate holidays as a family, a feat that has been virtually impossible until now,” organizers wrote.

‘Additionally, Gibson’s medical bills are absolutely enormous, including the electricity bills required to keep her medical equipment running 24 hours a day.

“This equipment literally keeps Koa here with us and as comfortable as possible.”

Daily Mail Australia has contacted the NDIS for comment.