Celine Dion claims she ‘almost’ DIED amid stiff person syndrome battle – as she opens up to Hoda Kotb in upcoming interview

Celine Dion recently revealed that she almost lost her life amid her battle with stiff person syndrome.

The 56-year-old singer is doing “much better” now, but “almost died” at one point, Hoda Kotb shared while teasing an upcoming episode of Today with Hoda and Jenna on Thursday.

Reflecting on what she learned from Dion during their interview, Kotb, 59, added: “It was a scary time.”

Earlier today, the trailer for the singer’s upcoming documentary was released, bringing fans to tears as they watched Dion open up about her heartbreaking battle with Stiff Person Syndrome.

And a few weeks earlier, Dion said she was “determined” to return to performing on stage and singing again – which Kotb said she was privileged to hear during their candid chat, adding that she sounded “incredible” .

Reflecting on what she learned from Dion during their interview, Kotb, 59, added: “It was a scary time.” She also said she was privileged to hear Dion sing, adding that she sounded “incredible.”

According to the Cleveland ClinicStiff Person Syndrome is a rare autoimmune neurological disorder that causes muscle stiffness and painful spasms.

Dion revealed that she was diagnosed with the disorder almost two years ago.

“She was diagnosed with a terrible disease and at one point she wondered if she would survive, if she would survive,” Kotb said.

‘A lot of people are wondering what happened [and] what was going on,” she added.

Kotb also revealed that Dion told her how the disorder affected her voice and touched on the “possibility of a comeback.”

“We missed her and it was a very emotional interview,” she remembers. “We’ll see where she is in her journey to get back, but I know people are cheering her on.”

Dion’s appearance on Today with Hoda & Jenna will air during the upcoming June 11 episode.

Earlier the same day, Amazon Prime released an emotional, raw trailer for the singer’s upcoming documentary, I Am: Celine Dion.

Dion revealed that she was diagnosed with the disorder almost two years ago. “She was diagnosed with a terrible disease and at one point she wondered if she would make it, if she would survive,” Kotb said of the hitmaker

Earlier the same day, Amazon Prime released an emotional, raw trailer for the singer’s upcoming documentary I Am: Celine Dion. In the clip, Dion broke down in tears as she admitted that the degenerative disease has affected her ability to perform; seen in September 2019

In the clip, Dion broke down in tears as she admitted that the degenerative disease has affected her performance. Towards the end of the trailer, Dion promised her fans that she would do anything to save her voice, which she called “the conductor of my life.”

I Am: Celine Dion premieres on Amazon Prime and is available to stream on June 25. Dion’s appearance on Today with Hoda & Jenna will air during the upcoming June 11 episode

In the clip, Dion broke down in tears as she admitted that the degenerative disease has affected her performance.

Towards the end of the trailer, Dion promised her fans that she would do anything to save her voice, which she called “the conductor of my life.”

“When your voice brings you joy, you are your best self,” she said. ‘I need my instrument.

“I have been diagnosed with a very rare neurological condition and I wasn’t ready to say anything, but now I am ready,” she added. “I see my life and I love every bit of it.”

On the possibility of a comeback, she said: “I work hard every day, but I have to admit it is a struggle. I miss it so much. The people… I miss them.

At the end of the trailer, Dion said, “If I can’t run, I walk. If I can’t walk, I crawl. But I won’t stop, she won’t stop.’

I Am: Celine Dion premieres on Amazon Prime and is available to stream on June 25.